Guest Blog

Friends Of ASCCA: Get to know Lizzie!

Hello everyone. My name is Elizabeth McGlynn, but everyone calls me Lizzie. I have a rare disability called Joubert syndrome. Joubert syndrome affects the part of the brain that controls balance and coordination.

Friends of ASCCA: Friends I’ve Met at Camp

Before Camp ASCCA, I did not have many friends. Those I did make would sometimes move away, and others didn’t understand my condition and would reject me. This hurt to the point that I just stopped trusting anyone as a friend. However, in 2018, Camp ASCCA changed everything.

Friends of ASCCA: It’s a Dream Come True

Happy holidays, readers! This year is off to a wonderful start, and I have so much to tell you about! Before I get to everything that happened over the break though, there’s something I have been absolutely dying to share. This blog took me much longer than I had hoped, so the wait has been really agonizing. 2020 has been so great, and I hope you’ll enjoy reading this as much as I have enjoyed living it.

Friends of ASCCA: Thankful for Epilepsy

I had seizures from the time I was born, but the first seizure my parents knew about happened in October 2002 when I was 3 years old. It was the middle of the night, and my mom thought she heard me throwing up.

Friends of ASCCA: McCartney shares about the Camp ASCCA community

When I left for camp Sunday morning, I was depressed. I’d spent the last few months in what seemed like a never ending spiral of anxiety. If I wasn’t stressing about my future, I was probably calling myself a terrible writer, a terrible advocate and an all around terrible, unlovable human being. I woke up that morning convinced I was destined to a life of loneliness and wasted potential.

Friends of ASCCA: Windsor shares about Christmas Weekend 2018

As winter approaches, so does Christmas Camp ASCCA! I attended Christmas Camp for the first time in December 2018, a few months after my first summer camp. The Christmas Camp was basically summer camp, but with Christmas traditions packed into a fun-filled weekend.

Friends of ASCCA: Windsor’s First Summer at ASCCA

I attended Camp ASCCA the first time in July 2018. When my parents told me about Camp ASCCA and the people who work there, it made me jump with joy to find out I was going. I admit, I was also unsure if I could handle every little thing they do because my parents wouldn’t be there with me the entire time. This would be the first time I would be away from home and without any family member with me, so I also wondered if I would be homesick.

Friends of ASCCA: Get to know Windsor!

Hi, my name is Windsor Joye! I was born with epilepsy due to a malformation of the left side of my brain. When I was 11 years old, I had surgery to get rid of seizures forever, and it was successful. I have not had any seizures ever since the brain surgery on August 10, 2010! However, immediately after the surgery, I was completely paralyzed on my left side, and intense therapy began.

Friends of ASCCA: Learn about AMC with McCartney

June 30 is a very special semi-holiday known as AMC Awareness Day! But you knew that, right? Of course you knew that. On that day, people across the world post pictures of themselves in blue to show support for my disability, right?